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Almost died, back alive, but still a bleak future

Sun Dec 28, 2008, 4:45 PM
Hey guys. I kinda just died randomly and people wondered where I went. The truth is that I actually literally almost died a few months ago due to a sickness called Idiopathic Thrombocytopenic Purpera (ITP).

Basically, what happened was that one day, I had a nose bleed for 14 hours none-stop, it was like a faucet just pouring. It's pretty common for me to get nose bleeds for 5ish hours, but 14 is pushing it. So I went to the doctors to ask wth is wrong. They did a blood test on me, turns out I had only 22000 blood platelets, normal is 150000-400000.

Doctors told me to go home and come back tomorrow to get it tested again. The next day I went back and turned out I had 2000, which is like extreme fucking red alarm danger zone. I was hospitalized and put on a predisone treatment which was supposed to cure 80% of ITP. That ended up failing.

So then they used an IV immune globulin treatment, normally used to cure people who don't respond to the predisone. With my damn luck, that treatment didn't work on me either.

Now doctors are kind of out of ideas. They did a bone marrow biopsy on me (cut open skin, drill 3 holes into hip bone, use hugeass needle and suck bone marrow out. Sedation doesn't go into the bone, so that hurt like pure fuck in hell).

Now I'm on this cancer medication which is "supposed" to help my sickness. It costs 13000 dollars per treatment, with a 7000 dollar co-pay, 4 treatments total. It's basically this weird hormone/steroid extract from mice. I'm living on that right now but it's not something good to live on.


So this is me right now. I'm half paralyzed, the other half in pain even with high dosages of Tylenol and Benedrol. I have a huge incision on my back and 3 holes on my hip bone, so I have trouble sitting and lying down, and it hurts to walk or stand. I'm half blind with triple vision, I gained 30 pounds within 1 month, I am always hungry, I have horrible temper, I think slower than normal all due to the side effects of the prednisone I'm on. I have over 30 bruises on my body and it's increasing by the hour. I get bruises on my feet if I stand, on my butt if I sit, on my back if I lie down. I get spontaneous bleeding in my ears eyes nose and gums. If I am experiencing fever, headache, vomiting and nausea, that means the treatment is working and everything is going well. If I stop feeling like shit, then something is wrong.



I don't think life sucks though, It's still fun to be around. I dropped out from school to get this stuff cured, so I'll be around. I started drawing again too because of all this free time, it's pretty fun. I got CS3 too, I'll probably be active on dA again.

  • Mood: Pain
  • Listening to: My Videogame Song Collection
  • Reading: My eyes don't work lol
  • Watching: Zero no Tsukaima 2
  • Playing: Silkroad/Chrono Trigger
  • Eating: Home food
  • Drinking: Tea

Devious Comments

love 0 0 joy 0 0 wow 0 0 mad 0 0 sad 2 2 fear 0 0 neutral 0 0
:iconsamuraiharuko:
Dude, you trooper. D:

I hope you get well soon cause this is a sucky sickness.

--
Always eat with determination.
:iconsuekay:
OMG...I hope you get better ASAP

My dad has chronic leukaemia, so he's had to have a few lumber punctures and he says it's the most painful thing he's ever been through.

His platelets - believe it or not - are around 16...the highest they've been in the past 4 years is about 55. It's normal for his condition. He bruises very easily and spent about 6 weeks in hospital this year due to the cancer, so I have an idea of what you're going through.

Hope everything works out

--
"Some have way with words, Some not have way...I are one of them!" - RDA

"Peace be in the galaxy, fool!" - The Hewlett

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:icondjangox:
D:

GET BETTER!!!!! D:

(And happy holidays)

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Mehehe... lol, I'm stupid. 8D
俺は馬鹿でござる。
*is so freaking weeaboo*
:iconinmc:
I hope you will finally get better.:cling:
You ares still young so you have a good chance that
this condition will go away within the next months.

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:iconflamesphere:
Wishing you the best of luck, dude. I know you'll get well soon. You're pretty damn strong to stand all that pain, and I can't even begin to imagine how much pain you felt.

But I know you'll get your good health back. :hug:

--
"You'll never guess what's in our meat. It's Apples!"
:iconcomenozes:
Good luck with that, I hope you get better soon!
:iconhouseplz::iconsaysplz:These doctors don't know the diference between tendonitis and carpal tunnel syndrome, seems that I'll have to solve everything again.

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